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TE %o <o Udo-33004/99

notifications · 2016 · State unknown

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Parent: THE RIGHTS OF PERSONS WITH DISABILITIES ACT, 2016 (c46106f331d39667efae765ade6016c4314a2613)

Text

TE %o <o Udo-33004/99 REGDNO.DL-33004/99 JIRTT XMMQ Che Gazette of Jndia 31HTe1UT EXTRAORDINARY HTT II_&ug 3 _34-7us (ii) PART II_Section 3__Sub-section (ii) wiferaT A waht?it PUBLISHED BY AUTHORITY A. 61] 76 fori , %aa , TNdT 5, 2018/ui0 15, 1939 No. 61] NEW DELHI, FRIDAY, JANUARY 5, 2018/PAUSHA 15,1939 HTHTT 7n 3ilv 3fera1Rat #ATTTY (FaTT Hrifdddrut f4HTT) 3fenTTT T frcdlt, T, 2018 31.3T. 76(31) ~uafd, faaiTW F?fddTaruT f~TTT, VTHoTT5 714 311 3fea1at TMTT fafT AufRrat feairf 3 YATN & faC Taio7 vdi wfabu1 & fvir-fdvt VSTN 3 fa Vf4d, fraT vgfdrTasrut f&1TT 31848TT 4 TRT 8 Jal, 2015 & 311v (3rjru-I) ETT %a f4vij951 #fAfa v3a 41 TF ef; 3R uaf fqq4si WfAfa + 10 T4F 2015 &1 d3d & 3k % fufq frT 4 frfafea sfjit 4 8 84 WfAfarui vefyat 4 w: @afdrya feaiTa (ii) ; afeTdTT; (iii) squ afeait (iv) frranifeid ~fa51 vi; Rat riajeft f4dRI wdat @fadt; (vi) faan viaef faR; (vii) TNTF TTaT; 311r (viii) & f~anTat 31R waf& fraTTF Fefddabru faTT ERT 877 8 8q_rfAfayi Tr 21 RTTTF, 2016, 3 3T4TTR, 2016 31h 23 WNI, 2017 & 3gf ETT vofyat 4 Tf gf / 31F waf& 34 89_qfAfaryi + farqa fd1_faFvf & d1 34- Ryilz Ta 4 3v 37 Rylat &1 Wfaa, fraF Frdabru fd1T 4 31848aI1 4 f4g1451 MfAfA ETT va 4 vf; 96 GI/2018 THE GAZETTE OF INDIA EXTRAORDINARY [PART II SEC. 3(ii)] 311 oafa fdg14s1 VfAfT + TT< f441 f& Pngy va) 4RaR &&q1uT TATT4 fATRat fraTTdT3f MHTTT7 Taia- 3k wfibu q fav-fdvt 313iRa &7 4 fa 31f35 64 7 31fela2d & ak TTTR vaft 8 84 #Afay) + rifba Ryilet &} 3fat 154 4+ & f&C Va1ez va 4dR #cu1u TATT4 +} #f Tf 2; 31R wafw 8 39 WAfy ERT Wza 4 T Rylat Q far &r+ & f&r FTa , Fanez vd 4aR 7 r1uj FTTT 44 318q8TTTT + 11 31941, 2017 31 va daq 311YIfeTaT 4 T 2f311 Tyeai PNey Ra 4Rar 361u HATT4 357 3JrNTTY 09 vv, 2017 aof} 2f; 31T: 31, 444 PTT fraiT 3fe41 31fefAyn, 2016 44 HRT 56 (2016 TT 49) E1 Wat gfazrf 71 TTT &rd g8, 31

Rule TOC

96 · GI/2018
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10 · - 39%
40 · - 50%
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90 · 4
89 · 3
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87 · 2
86 · 1
85 · 0
84 · 0
82 · 9
81 · 8
80 · 8
79 · 7
78 · 6
77 · 6
76 · 5
75 · 4
74 · 4
73 · 3
72 · 2
71 · 2
70 · 1
69 · 0
68 · 0
66 · 9
65 · 8
64 · 8
63 · 7
62 · 6
61 · 6
60 · 5
59 · 4
58 · 4
57 · 3
56 · 2
55 · 2
54 · 1
53 · 0
52 · 0
50 · 9
49 · 8
48 · 8
47 · 7
46 · 6
45 · 6
44 · 5
43 · 4
42 · 4
41 · 3
40 · 0
39 · 2
38 · 1
37 · 1
36 · 0
34 · 9
33 · 9
32 · 8
31 · 7
30 · 7
29 · 6
28 · 5
27 ·
26 · 4
25 · 3
24 · 3
23 · 2
22 · 1
21 · 1
18 · 9
17 · 9
16 · 8
15 · 7
14 · 7
13 · 6
12 · 5
11 · 5
10 · 4
09 · 3
8 · 3
07 · 2
06 · 1
05 · 1
4 · 0
2 · 9
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00 · 0
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22 · 2.
5 · j v 44 3119 T % ddi & 31eT YHTU_W3
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23 · 5. 14
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40 · THE GAZETTE OF INDIA EXTRAORDINARY ~VMHIfTd5 fraiat (HNfTd 75vuTaT) 31 Taquid7 f441 GTTRT | aq 37 F2ayf TUI; V V+d (90_v) /90 &T Tri &ra g8 4 uff /
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25 · 6.
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46 · THE GAZETTE OF INDIA EXTRAORDINARY aa afeR #T Houia7
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40 · %
50 · %
60 · %
65 · %
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20 ·
13 · 2_ 3_ 4_ 5_
90 · where a = higher value and b = lower value 13.1. HAND COMPONENT: a) Total value of hand component is 90% The functional impairment of hand is expressed as loss of prehension, loss of sensation and loss of strength: 1.3.2. Principles of evaluation of prehension: Total value of prehension is 309 It includes:
2 · 1.1. MOBILITY COMPONENT Total value of mobility component is 90% which includes range of movement (ROM) and muscle strength: 2.1.2. Principles of Evaluation of Range of Movement: a) The value of maximum range of movement in mobility component is 90% (b) Each of three joints i.e. hip, knee and foot-ankle component was earlier weighed equally 309, but functional evaluation in clinical practice indicates greater limitations imposed if major proximal or middle joints are involved and, therefore, the appropriate weightage is given to involvement of proximal and middle joints, as follows:
2 · 3
259 · O more compression of one or two adjacent vertebral bodies with 20% No involvement of posterior elements, No nerve root involvement; moderate Neck rigidity and persistent Soreness_ Posterior element damage with radiological evidence of moderate dislocation/subluxation including whiplash injury A) With fusion healed, No permanent motor Or sensory changes 10% B) Persistent pain with radiologically demonstrable instability. 25%
4 · Non Traumatic Lesions:
40 · to 60
3 · cm_ to 4 cm_
2 · cm_ to less than 3 cm
31 · to 40
21 · to 30
11 · to 20
5 · to 10
3 · 1-5.0 cm
5 · 1 and above
4 · 8. Torso Imbalance Plumb line dropped from external ear normally falls at ankle level:. The deviation from normal should be measured from ankle anterior joint line to the plumb line. Less than 5 cm in front of ankle 49
5 · to 10 cm in front of ankle
10 · t0 15 cm in front of ankle
80 · 75 70 65 60 55
10 ·
5 · 3
2 · 1
5 · 2 1
5 · 3. Lower Limb Amputations: No. Level of Lower Limb Amputation
12 · 13 14_
15 · 16. 17_
6 · Guidelines for Evaluation of Permanent Physical Impairment of Congenital deficiencies of the extremities Congenital limb deficiency simply means the partial or total absence of limb at birth These may be sporadic or syndromic. variety of limb classification systems have been used over the years. The current and accepted form of classification that has been adopted internationally since 1998 is the ISPO (International Society for Prosthetics and Orthotics) classification system_ Common examples of congenital limb deficiencies include congenital femoral deficiency, proximal focal femoral deficiency and congenital tibial deficiency in lower limb and congenital radial longitudinal deficiency (radial club hand) and congenital ulnar longitudinal deficiency in upper limb. TRANSVERSE DEFICIENCIES 6.1. Functionally congenital transverse limb deficiencies are comparable to acquired amputations and can be called synonymously as congenital amputation. However, in some cases revision of amputation is required to fit in a prosthesis. 6.2. The transverse limb deficiencies therefore should be assessed on basis of the guidelines applicable to the evaluation of PPI in cases of amputees as given in the preceding chapter: For example: PPI Transverse deficiency Rt: Arm complete (shoulder disarticulation) 90% Transverse deficiency at thigh complete (hip disarticulation) 909 Transverse deficiency Proximal Upper arm (Above elbow) 85% Transverse deficiency at lower thigh (Above knee, Lower 1/3) 80% Transverse deficiency forearm complete (elbow disarticulation) 759 Transverse deficiency lower forearm (Below Elbow) 659 Transverse deficiency carpal complete wrist disarticulation) 609 Transverse deficiency Metacarpal complete (Disarticulation through carpal bones) 55%
0 · 5
1 · 5
2 · 5
20 · 24 27
3 · 5
4 · 5
5 · 5
10 · 399
40 · 509
10 · 4. Normally any neurological assessment for the purpose of certification has to be done six months after the onset of disease; however; exact time period is to be decided by the Medical Doctor who is evaluating the case and has to recommend the review of certificate as given in the standard format of certificate. 10.5. Total percentage of physical impairment in any neurological condition shall not exceed 1009. 10.6. In mixed cases the highest score will be taken into consideration. The lower score will be added to it by the help of combining formula: a + b (90-a) _ 90 10.7. Additional rating of 10% will be given for involvement of dominant upper extremity. 10.8. Additional weightage up to 10% can be given for loss of sensation in each extremity but the total physical impairment should not exceed 100%. Motor System Disability 11. Stroke IL.1. The modified Rankin Scale (mRS) is a commonly used scale for measuring the degree of disability or dependence in the daily activities of people who have suffered stroke or other causes of neurological disability. The scale runs from 0-6, running from perfect health without symptoms to death: 0 No symptoms_ 1 No significant disability. Able to carry out all usual activities, despite some symptoms_ 2 Slight disability. Able to look after own affairs without assistance, but unable to carry out all previous activities_
3 · Moderate disability. Requires some help, but able to walk unassisted:
4 · Moderately severe disability. Unable to attend to own bodily needs without assistance, and unable to walk unassisted.
5 · - Severe disability. Requires constant nursing care and attention, bedridden, incontinent
6 · Dead.
12 · Other Neurological Disability 12.1. Extent of Sensory Deficit Anaesthesia
40 · to 60%
13 · Spinal Cord Injuries 13.1. The resulting impairment and disability after Spinal Cord Injury (SCI) is typically significant and devastating: The determination of impairment and disability after SCI is usually straightforward and may be accomplished by general categorization of an individual's neurologic and functional level. Although secondary medical difficulties, such as pressure ulcers, spasticity, deep venous thrombosis, heterotopic ossification myopathic pain syndromes, restrictive pulmonary compromise etc_ which may impact both impairment and disability, can arise at any time after SCI, neurologic and functional abilities are typically stabilized by twelve months_ 13.2. Documenting impairments in person with an SCI is best determined by performing standardized neurological examination as endorsed by the International Standards for Neurological Classification of Spinal Cord Injury (ISNCSCI) Patients_ Persons with Spinal Cord Injury are graded on the ASIA (American Spinal Injury Association) Impairment Scale_
14 · 5. Given below are the frequently noted physical consequences of acid attacks: Skull: May be partly destroyed or deformed. Hair is often lost Forehead: Skin may shrink, as though stretched tightly, and be scarred. Ears: Shriveled up and deformed. Deafness may occur immediately or later: Cartilage in the ear is usually partly or totally destroyed, exposing the victim to future infection and hearing loss. Eyes: Direct acid contact or acid vapors can damage eyes, causing blindness Even if the eyes survive the acid attack, they remain vulnerable t0 other threats which can cause blindness during the victim'$ recovery. Eyelids may have been burned off, O may be deformed by scarring, leaving the eyes to dry up and go blind This is very difficult to prevent Nose: Shrunken and deformed. Nostrils may close completely because the cartilage is destroyed. Cheeks: Scarred and deformed: Mouth: Shrunken and narrowed, and may lose its shape. Lips may be partly or totally destroyed. Lips may be permanently flared, exposing the teeth: Movement of the lips, mouth and face may be impaired. Eating can be difficult Chin: Scarred and deformed The scars may run downward, welding the chin to the neck O chest Neck: Often badly damaged: It may have thick cord of scarred flesh running down from the chin to the upper chest; O wide heavily-scarred area on one side of the neck Victim may be unable to extend the neck; or the head may constantly lean to one side.
14 · 9. The total % of permanent impairment/disability will not exceed 100%.
16 · Leprosy Cured Persons with disabilities 16.1. Definition - leprosy cured person means person who has been cured of leprosy but is suffering from- loss of sensation in hands or feet as well as loss of sensation and paresis in the eye and eye-lid but with no manifest deformity; 11) manifest deformity and paresis but having sufficient mobility in their hands and feet to enable them to engage in normal economic activity; iii) extreme physical deformity as well as advanced age which prevents him/her from undertaking any gainful occupation, and the expression 'leprosy cured' shall construed accordingly: 16.2. WHO grading of disability in Leprosy: Highest grade for each eye or hand or foot = 2. Maximum EHF sum score = 12. (E= Eyes, H= Hands, F= Feet) Grade Eyes Hands Feet No eye problem due to leprosy; No anaesthesia; no visible No anaesthesia, no visible no evidence of visual loss deformity Or damage deformity Or damage Eye problem due to leprosy Anaesthesia present, but no Anaesthesia present; but no present; but vision not severely visible deformity O damage visible deformity Or damage affected as result of these (vision: 6/60 or better; can count fingers at 6 metres) Severe visual impairment (vision Visible deformity or damage Visible deformity Or damage worse than 6/60, inability to count present (such as present (such as fingers at 6 metres). Also includes cracks/wounds, claw fingers, cracks/wounds, claw toes, lagophthalmos, iridocyclitis and wrist drop; contractures, foot drop, contractures, corneal opacities amputation etc.) amputation etc.)
16 · 3. For sensory testing of hands and feet, light touch (just enough to indent the skin very slightly) of the tip of ball point pen is recommended_ 16.4. For testing loss of corneal sensation, light touch of the clean cotton wisp from the lateral side is recommended. It is also to be noted whether blinking of the eyes is normal 0 not_ 16.5. Muscle power is tested clinically by Voluntary Muscle testing of commonly examined peripheral nerves and graded as per the Medical Research Council, London Scale. EHF (Eyes; Hands, Feet) Grade Score is calculated. Higher the Score, greater the Disability. Maximum EHF Score possible is 12. EHF Score is 0-1, then % of Disability is up to 209. EHF Score is 2-3, then % of Disability is 209 to 409. EHF Score is 4-5 then % of Disability is 419 to 609. EHF Score is 6-7 then % of Disability is 61% to 709. EHF Score is 8-9 then % of Disability is 719 to 80%. EHF Score is 10-11 then % of Disability is 819 to 90%. EHF Score is 12 then % of Disability is 91 to 100%. 16.6. In leprosy cured person with involvement of dominant upper extremity (mostly right hand), additional 10% weightage is to be given Total permanent physical impairmentldisability % will not exceed 100%. In leprosy cured
17 · Guidelines for Evaluation of PPI in cases of Short Stature/Dwarfism: 17.1. Definition - Dwarfism means medical 0r genetic condition resulting in an adult height of 4 feet 10 inches (147 centimeters) or less
17 · 2. The evaluation of a short statured person shall be considered irrespective of whether it is of proportionate variety O disproportionate variety and is accompanied by an underlying pathological conditions, Every 17 vertical height reduction shall be valued as 4% permanent physical Impairment in relation to whole body. Associated skeletal deformities such as contractures O deformities shall be evaluated, separately and total percentage of both shall be added by combining formula.
3 · feet 11 inches
3 · feet 10 inches
3 · feet 9 inches
3 · feet 8 inches
3 · feet inches
3 · feet 6 inches
3 · feet 5 inches
3 · feet 4 inches
3 · feet 3 inches
3 · feet 2 inches
3 · feet 1 inch
3 · feet
2 · feet 11 inches
2 · feet 10 inches
2 · feet 9 inches
18 · Muscular Dystrophy 18.1. Definition - 'muscular dystrophy' means a group of hereditary genetic muscle disease that weakens the muscles that move the human body and persons with multiple dystrophy have incorrect and missing information in their genes, which prevents them from making the proteins they need for healthy muscles_ It is characterised by progressive skeletal muscle weakness, defects in muscle proteins, and the death of muscle cells and tissue_ 18.2. After detailed clinical examination, each of the features namely, weakness, contractures, scoliosis, cardiac or pulmonary involvement are evaluated and disability is computed based on the criteria for each of these and added to the locomotor disability component; using the combining formula: + b (90-a) 90 (a higher value, b = lower value) Disability is to be expressed in relation to the whole body. Total % of disability will not exceed 100% . Due to progressive nature of this disease, review may be necessary after period, such as 2 years O as desired by the patient Or as decided by the disability board. 18.3 Medical Authority and instruments required for certification of locomotor disability 18.3.1 The Medical Superintendent or Chief Medical Officer Or Civil Surgeon O any other equivalent authority as notified by the State Government shall be the head of the certification board for the purpose of certification of locomotor disability including cerebral palsy, leprosy cured, dwarfism; acid attack victims and muscular dystrophy: The Board shall comprise of: Medical Superintendent o Chief Medical Officer or Civil Surgeon (ii) Specialist in Physical Medicine and Rehabilitation or Specialist in Orthopedics (iii) One specialist as nominated by Chief Medical Officer as per the condition of the person with disability: 18.3. 2. The most important resource is the knowledge and skill of the Members/Experts involved in the process. However; a few items listed below may also be required: measuring tape for measuring vertical height of the person, degree of chest expansion, shortening of an extremity, O difference in girth of a limb etc- b Goniometers small, medium and large, for measuring range of motion at different joints, Hand-held dynamometer; d_ Clean cotton piece for testing corneal sensation, A ball point pen for testing sensory deficit eg-, in leprosy-cured person; f X-ray films, e.g-, in cases with spinal deformity, amputation, arthritis, club foot, congenital limb deficiency, fractures etc _
19 · 1. Definition.- Visual impairment
19 · 3. Visual Impairment Certification Criteria and Gradation Vision assessment should be done after best possible correction (medical, surgical or usuallconventional spectacles). The Ophthalmologist shall circle the vision Status and the Percentage Impairment and mark the Disability category accordingly as under: -
1 · 6/6 to 6/18 % 0 6/24 10 % 1 6/36 10 % J 6/60 10 % 1 3/60 20 % 1 2/60 30 % 4 1/60 30 % 1 HMCF to PL- 30 %
10 · %
10 · %
10 · %
20 · %
30 · %
30 · %
30 · %
40 · %
40 · %
40 · %
50 · %
60 · %
60 · %
60 · %
40 · %
40 · %
40 · %
50 · %
60 · %
60 · %
60 · %
40 · %
40 · %
40 · %
50 · %
60 · %
60 · %
60 · %
50 · %
50 · %
50 · %
70 · %
80 · %
80 · %
80 · %
60 · %
60 · %
60 · %
80 · %
90 · %
90 · %
90 · %
60 · %
60 · %
60 · %
80 · %
90 · %
90 · %
90 · %
60 · %
60 · %
60 · %
80 · %
90 · %
90 · %
100 · %
40 · %
50 · %
60 · %
7 · <105
50 · %
70 · %
80 · %
60 · %
80 · %
100 · %
20 · 1. Definition: a) "Deaf" means persons having 70 DB hearing loss in speech frequencies in both ears; "Hard of hearing" means person having 60 DB to 70 DB hearing loss in speech frequencies in both ears; 20.2. Guidelines for Assessment: 20.2.1. Measurement Air Conduction Thresholds (ACT): a) ACT is to be measured using standard Pure Tone Audiometry by an Audiologist for Right Ear and Left Ear separately. b) In case of non-reliable ACT, additional tests are recommended such as Immittance, and Speech audiometry o Auditory Brainstem Response (ABR) Testing: Measuring ACT may be difficult in children aged 3-5 years. In such cases, Conditioned Pure Tone audiometry/Visual Reinforcement Audiometry (VRA) shall be conducted. ABR or Auditory Steady State Response (ASSR testing can be advised for the estimation of ACT in infant and young children_ 20.2.2 Computation of Percentage of Hearing Disability: (a) Monaural Percentage of Hearing Disability (i) Calculate Pure tone average of ACT for 500 Hz, 1000 Hz, 2000 Hz, 4000 Hz for Right Ear and Left ear separately (whenever there is no response at any frequency ACT is to be considered as 95dB) (ii) Monaural percentage of hearing disability is to be calculated as per the ready reckoner given below separately for Right Ear and Left Ear
61 · 62 G G 1 79 80 81 82 83 84 85 86 87 88 89 90 92 93 94 95
41 · 71 43.42 45.13 46.84 48.55 50.26 51.97 53.68 55.39 57.1 58.81 603} 63.,55 67.36 69.07 70.78 72.49 74.2 75.91 77.62 79.33 81.04 82.75 84.46 86.17 87.88 89.59 91.3 93.01 94.72 96.43 98.14 100
20 · 2.3. Percentage of Hearing Disability Percentage of Hearing Disability Better_ ear %_of_hearing disability X 5) + (Poorer ear %_of hearing disability)
20 · 3.1. Definition: Speech and language disability' means a permanent disability arising out of conditions such as laryngectomy O aphasia affecting one O more components of speech and language due to organic O neurological causes 20.3.2. Conditions affecting Speech Components for which Speech Disability certificate can be issued Laryngectomy Glossectomy
20 · 3.3. Computation of Percentage Speech Disability (a) Speech Intelligibility Test The verbal output of person should be evaluated using either Perceptual Speech intelligibility rating scale (AYJNISHD, 2003) or Perceptual Rating Scale (SRMC, Chennai) and percentage of Speech Intelligibility Affected (SIA) to be measured based on score as given below: Score Percentage of Speech Intelligibility Affected (SIA) 0-15 2 16-30 3 31-39 40-55 5 56-75 6 76-89 90- 100 (b) Voice Test Consensus Auditory Perceptual Evaluation of Voice (CAPE-V) orDysphonia Severity Index (DSI) can be used for measuring percentage of Overall Voice Clarity Affected (OVCA) which includes roughness, breathiness, strain, pitch and loudness. Average score to be given weighted for the percentage of overall voice clarity affected Score Percentage of overall voice clarity affected (OVCA) 0-15 2 16-30 3 31-39 40-55 5 56-75 6 76-89 7 90-100
20 · 4.1. Conditions affecting Language Components for which Language Disability certificate can be issued Aphasia 20.4.2. Language Test Western Aphasia Battery (WAB in Indian languages is to be administered post Six month of the onset of the stroke and Aphasia Quotient (AQ) is to be calculated as per standard procedure by an Speech language pathologist. 20.4.3. Percentage of Language Disability Percentage of Language Disability can be computed directly from the ready reckoner given below by intersection of value for Number in Tens place in WAB score and Number in Unit place in WAB score. For example, if the AQ is 56, intersection of 5 (in column) and 6 (in row) is 40_ The Percentage of Language Disability is 40%.
98 · 9
97 · 8
96 · 8
95 · 7
94 · 6
93 · 6
92 · 5
91 · 4
90 · 4
89 · 3
88 · 2
87 · 2
86 ·
85 · 0
84 · 0
82 · 9
81 · 8
80 · 8
79 · 7
78 · 6
77 · 6
76 · 5
75 · 4
74 · 4
73 · 3
72 · 2
71 · 2
70 · 1
69 · 0
68 · 0
66 · 9
65 · 8
64 · 8
63 · 7
62 · 6
61 · 6
60 · 5
59 · 4
58 · 4
4 · 5 6 7
57 · 3
56 · 2
55 · 2
54 · 1
53 · 0
52 · 0
50 · 9
49 · 8
48 · 8
47 · 7
46 · 6
45 · 6
44 · 5
43 · 4
42 · 4
41 · 3
40 · 0
39 · 2
38 · 1
37 · 1
36 · 0
34 · 9
33 · 9
32 · 8
31 · 7
30 · 7
29 · 6
28 · 5
27 · 5
26 · 4
25 · 3
24 · 3
23 · 2
22 · 1
21 · 1
18 · 9
17 · 9
16 · 8
15 · 7
14 · 7
13 · 6
12 · 5
11 ·
10 · 4
09 · 3
8 · 3
07 · 2
06 · 1
05 · 1
4 · 0
2 · 9
1 · 9
0 · 8
00 · 0
00 · 0
00 · 0
00 · 0
00 · 0
00 · 0
20 · 4.4. Medical Authority. The Medical Superintendent or Chief Medical Officer Or Civil Surgeon or any other equivalent authority as notified by the State Government shall be the head of the certification medical authority for the purpose of certification of hearing disability, and speech and language disability. The certification medical authority shall comprise of: Medical Superintendent or Chief Medical Officer or Civil Surgeon Or any other equiv valent authority ENT Specialist iii) One specialist (audiologist/speech language pathologist) as nominated by the Medical Superintendent or Chief Medical Officer O Civil Surgeon or any other equivalent authority as notified by the State Government_
21 · Intellectual Disability 2L.1. Definition Intellectual disability, condition characterised by significant limitation both in intellectual functioning (rasoning, learning problem solving) and in adaptive behaviour which covers range of every day, social and practical skills.
94 · THE GAZETTE OF INDIA EXTRAORDINARY [PART II-SEC. 3(ii)] 21.2. Screening: Many of these children are on follow-up with pediatricians as developmental delay. Hence, they can be assessed by pediatricians and screened for associated cO-morbidities, viz. hearing/ vision/ locomotor impairmentsl epilepsy. Then these children are referred for detailed assessment: (See Figure 1) 21.3. Diagnosis: The screened children will be referred to Child/ clinical psychologists for Adaptive functioning and IQ testing: The tools that can be used for the same include: Adaptive functioning: VSMS IQ testing: BKT/ MISIC Based 0n the above the diagnosis of ID will be confirmed. Based on adaptive functioning assessment; severity scoring will be done and disability for ID charted. 21.4. Disability calculation: The disability calculation will be done based 0n VSMS score. The following will be used for disability calculation: VSMS score 0-20: Profound Disability-100% VSMS score 21-35: Severe Disability-90% iii) VSMS score 36-54: Moderate Disability-75% VSMS score 55-69: Mild Disability-5O% VSMS score 70-84: Borderline Disability-25% 21.5. Age for certification: The minimum age for certification will be one (01) completed year. Children above one year and up to the age of 5 years shall be given a diagnosis as Global Developmental Delay (GDD) Children above the age of 5 years shall be given a diagnosis and certificate as Intellectual Disability. 21.6. Medical Authority: The Medical Superintendent o Chief Medical Officer or Civil Surgeon or any other equivalent authority as notified by the State Government shall be the head of the Medical Board. The Authority shall comprise of: The Medical Superintendent or Chief Medical Officer or Civil Surgeon o any other equivalent authority as notified by the State Government Pediatrician or Pediatric Neurologist where availabley Psychiatrist or Physician (if age >18years _ Clinical or Rehabilitation Psychologist Psychiatrist
21 · 7 . Validity of Certificate: Temporary certificate for children less than 5 years: The certificate will be valid for maximum 3 years/ 5 years age whichever is earlier)_ (i1) For children more than 5 years: The certificate will mention a renewal age. The certificate will have to be renewed at age of 5 years, 10 years and 18 years. The certificate issued at 18 years age will be valid lifelong:
22 · Specific Learning Disability (SLD): 22.1. Definition._ 'specific learning disabilities' means heterogeneous group of conditions wherein there is a deficit in processing language, spoken O written, that may manifest itself as difficulty to comprehend, speak, read, write, spell, or to do mathematical calculations and includes such conditions as perceptual disabilities, dyslexia, dysgraphia, dyscalculia, dyspraxia and developmental aphasia; 22.2. Screening - The teachers of the public and private school shall carry out the screening in Class III O at eight years of age, whichever is earlier_ The screening test is given in Figure 2. If in the screening shows test three or more answers are in ~frequently" column, then the child should be referred for further assessment ii) Every school (public and private) shall have screening committee headed by the principal of the school_ After applying the screening test, if an anomaly is detected then; the teacher should bring it to the notice of principal and screening committee of the school The teachers shall interview the parents to assess their involvement and motivation regarding their child' s education_ If the parents are motivated and screening questionnaire suggests SLD, then child should be referred for further assessment: iii) The child shall be referred to pediatrician for SLD assessment by the principal of the school with the recommendations of the screening committee endorsed. 22.3. Diagnosis: The diagnosis will require a team approach involving pediatrician and clinical or rehabilitation psychologist This would involve three steps:
22 · 4. Diagnostic Tool National Institute for Mental Health and Neurosciences (NIMHANS) battery shall be applied for diagnostic test for SLD.
22 · 5. Medical Authority: The Medical Superintendent o Chief Medical Officer or Civil Surgeon or any other equivalent authority as notified by the State Government shall be head the certification authority. The medical authority will comprise of: The Medical Superintendent or Chief Medical Officer or Civil Surgeon O any other equivalent authority as notified by the State Government Pediatrician o Pediatric Neurologist where available) Clinical or Rehabilitation Psychologist Occupational therapist or Special Educator or Teacher trained for assessment of SLD: 22.6. Validity of Certificate: The certification will be done for children aged eight years and above only. The child will have to undergo repeat certification at the age of 14 years and at the age of 18 years. The certificate issued at 18 years will be valid life-long:
23 · 1. Definition: mental illness means a substantial disorder of thinking, mood, perception, orientation Or memory that grossly impairs judgment, behaviour, capacity to recognise reality o ability to meet the ordinary demands of life, but does not include retardation which is condition of arrested or incomplete development of mind of a person, specially characterised by subnormality of intelligence. 23.2. The examination process will consist of components as required namely, clinical assessment, IDEAS scale andlor IQ assessment_ 23.3. Indian Disability Evaluation and Assessment Scale (IDEAS) administration (see Appendix IV) is to be used for mental illness_ 23.4. In some cases where there is suspicion of intellectual deficits or additional intellectual evaluation is required for any reason, Standardised IQ test may be carried out. Categories on IQ score will be: Mild Mental Disabilities: The range of 50 to 69 (standardised IQ test) is indicative of mild disability. H) Moderate Mental Disability: The IQ is in the range of 35 to 49 (iii) Severe Mental Disability: The IQ is in the range of 20 to 34. (iv) Profound Mental Disability: The IQ in this category estimated to be under 20.
24 · Medical Authority: The Medical Superintendent or Chief Medical Officer or Civil Surgeon o any other equivalent authority as notified by the State Government shall be head of the certification authority with the following two other members- a) Psychiatrist for clinical assessment; (b) Trained psychologist to administer IQ tests_
25 · 1. Definition:
25 · 3. Neurological conditions which are reversible and without sequel are not certifiable. Only neurological conditions which are permanent are certifiable_ Permanent disability certificate can be issued in irreversible/progressive cases If needed in specific cases, a re-evaluation of disability can be done after period of one year: 25.4_ The disability certificate shall mention Chronic Neurological Conditions (name of disease) 25.5. Medical Authority: The Medical Superintendent or Chief Medical Officer or Civil Surgeon or any other equivalent authority as notified by the State Government shall be the head of the certification authority with the following two other members:
25 · 6.
25 · 7. In cases where the chronic neurological condition requires only IDEAS, then only IDEAS can be administered and degree of disability certified. 25.8. In cases where the chronic neurological condition requires only IQ, then standardized IQ test should be used to certify degree of disability. 25.9. In some cases, only one test may not estimate disability comprehensively. Such a person may have borderline score on one test with marked disability score on the other. In such cases both IQ and IDEAS shall be used. The score indicating more severe disability shall be the degree of disability for that person
26 · 1. Definition: - Blood disorder in relation to sickle cell disease" means hemolytic disorder characterised by chronic anemia, painful events, and various complications due to associated tissue and organ damage; hemolytic' refers to the destruction of the cell membrane of red blood cells resulting in the release of hemoglobin: (ii) "thalassemia means group of inherited disorders characterised by reduced or absent amounts of haemoglobin. (iii) "haemophilia means an inheritable disease, usually affecting only male but transmitted by women to their male children, characterised by loss O impairment of the normal clotting ability of blood so that a minor wound may result in fatal bleeding; 26.2. Type of disability certificate The process of evaluation shall be dynamic and to be reviewed periodically at least one year interval, as these diseases are progressive in nature. However; in patients with severe disability with score above 80%, permanent certificate shall be issued subject to proof of survival: 26.3. Medical Authority Medical Authority for certification and evaluation of disability due to blood disorder shall comprise of the following: a) Chief District Medical Officer or the Chief Medical Officer of the hospital Chairperson General physician Or paediatrician as the case may be Orthopaedic surgeon or PMR expert In case specialities sequel relating to visual abnormality, hearing problem, cerebral dysfunction, respective specialist: 27 . Sickle Cell Disease 27.1. The clinical syndromes resulting from disorders of hemoglobin synthesis are referred to as hemoglobinopathies They are grouped in three main categories: Those owing to structural variants of hemoglobin, such as Sickle cell disease (HbS) Those owing to the failure to synthesize one Or more of the globin chains of hemoglobin at normal rate, as in the Thalassemias _ Those owing to the failure to complete the normal neonatal switch from fetal hemoglobin (Hb F) to adult hemoglobin Hb A) The third category comprises a group of disorders referred to as hereditary presence of fetal hemoglobin (HPFH)_ 27.2. Individual can have a combination of two or more of these abnormalities_
28 · STRUCTURE VARIANTS: 28.1. Alteration in the structure of hemoglobin are usually brought about by point mutations affecting one O in some cases two or more bases coding for amino acids of the globin chains. In HbS such point mutation is caused by the substitution of valine for glutamic acid in position 6 of 8 globin chain: 28.2. Hemoglobin variants of clinical significance or genetic significance (e.g Hbs S, C, Dpunjab E and O arab: are readily detectable by electrophoretic and chromatographic techniques.
29 · 1. The term *sickle cell disease" (SCD) encompasses both homozygous and the compound heterozygous states that lead to the symptomatic disease as a result of formation of sickle cell red cell, due to presence of Hb S_ 29.2. The homozygous state or sickle cell anemia cause both haemolysis and also reduced oxygen affinity of HbS. Sickle cell anemias refers to specifically to those Individuals having homozygous for the sickle cell disease (HbSS), compound heterozygous (HbS/B") thalassaemia. 29.3. The main clinical disability arises from repeated episodes of vaso- occlusive events (called painful crisis), organ dysfunction, impairment of vision, hearing, anemia, bone disease, pulmonary complications, skin ulcerations, gall bladder stones and psychological problems_ 29.4. Main problem occurs because of easy deformability of RBC under stress sickling), hypoxia Or infection, and RBC becomes SICKLE SHAPE hence this name_ 29.5. The clinical severity of sickle cell anemia is extremely variable It is partly due to the modifying factors such as interaction with Thalassemia or synthesis of HbF and partly to socioeconomic conditions and other factors that influence general health: 29.6. Sickle cell trait (B genotype AS), heterozygous state, is not associated with hematological abnormalities In this group sickling occurs at very high altitude and low oxygen pressure 30. Other forms of sickle cell disease
32 · 5. Strokes and transient ischemic attacks (TIAs) The biggest risk of permanent impairment and disability for individuals with SCD is cognitive and psychomotor impairment secondary to a stroke. Silent cerebral infarcts can cause specific cognitive deficits, notably in attention and executive function which are critical for successful academic performance. Language deficits, unrelated to CVA, have been reported among children with SCD: This could lead to the communication problems in school and the workplace. Mobility impairment can occur among children as result of cerebral palsy which can result from stroke), stroke, and other aetiologies This is serious condition and such patients should be referred to higher center to receive evaluation and required management: Patients who have suffered strokes_ TIAs etc_ will need transcranial Doppler (TCD), computerized axial tomography, MRI, or MRI with angiography: Comprehensive management of SCD requires multi-specialty team_ especially for young children with these complications 33. Other complications: Rare complications include leg ulcers, pulmonary hypertension, avascular necrosis head of femur, psychosocial issues etc. At least an annual review by a hematologist will be necessary for these children; they will need t0 transit t0 adult care for further management as they grow older. Some patients may benefit from allogeneic hematopoietic stem cell transplant. Sickle cell disease transplant indications are very selective, due to the risks of morbidity associated with the transplant procedure_ 34.1. Indications for allogeneic Hematopoietic stem cell transplant (HSCT) for sickle cell disease: a) Stroke or central nervous system event lasting longer than 24 hours, acute chest syndrome with recurrent hospitalizations Or previous exchange transfusions_ Recurrent vaso-occlusive pain (more than 2 episodes per year over several years_ or recurrent priapism. Impaired neuropsychological function with abnormal cerebral MRI scan Stage I or II sickle lung disease Sickle nephropathy (moderate Or severe proteinuria O glomerular filtration rate 30 to S0% of the predicted normal value) Bilateral proliferative retinopathy with major visual impairment in at least one eye Osteonecrosis of multiple joint (h) Red-cell allo-immunization during long-term transfusion therapy 34.2. Transfusions are needed in only special indications. If transfusions needed, then pre transfusion extended red cell typing is required [Rh Sub group (Cc, Ee), Kell, Kidd, Sls] as these patients frequently develop delayed Hemolytic Transfusion Reaction (309 cases) and allo- immunization Children receiving regular transfusions will need to have serum ferritin monitoring and chelation therapy: 34.3. The aim of transfusions t0 reduce Hb S levels to below 30 % prevent strokes in children with high central nervous system blood flow [evidence from the Stroke Prevention Trial in Sickle Cell Anemia (STOP I)]: 34.4. Prevention of complications can be achieved by prescribing Hydroxyurea and judicious use of blood transfusions_ Hydroxyurea decreases crises in patients with severe sickle cell disease 34.5. Whereas those with sickle cell trait (HbAS), HbS/Bt or HbSC typically have mild to moderate symptoms. 35. The international classification of functions disability and health (ICF), distinguishes functional and structural impairments from limitations in personal activities and restriction on social participation. The disability changes over time hence it should be measured longitudinally. 36. Severity Score 0- homozygous sickle cell disease but asymptomatic-but has got mild pallor HCT 30) and splenohepatomegaly and diagnosis confirmed by Hb electrophoresis 13 Sickle cell anemia such as (HbSS), compound heterozygous (HbS/B") thalassaemia HbSD, and HbO arab anaemia that is severe and chronic, with persistent haemocrit of 269 O less, and symptomatic, requiring blood transfusions to maintain the HbS level < 309 and TRANSFUSION DEPENDANT and symptomatic aS per New York Heart Association (NYHA more than class 2 2 Above plus Painful crisis due to blood clots in blood vessels at least three times in the past five months vaso- occlusive crisis or thrombotic crisis).
3 · Above plus Hospitalization beyond that of emergency care at least three times in the past 12 months (could be due to aplastic episodes, haemolytic crisis, strokes, heart problems, kidney failure OT pneumonia)
3 · , 6 7
37 · Thalassemia 37.1. Thalassaemia refers to group of blood diseases characterized by decreased or absent synthesis of globin chains. Most thalassaemia are inherited as recessive traits_ From clinical point of view most relevant types are and B thalassaemias . Currently based on their clinical severity and transfusion requirement; these thalassaemia syndromes can be classified phenotypically into two main groups; transfusion dependent thalassaemias (TDTs) and Non-transfusion dependent thalassaemias (NTDTs). 37.2. Screening is based 0n estimation of Hemoglobin Hb) by digital Hemoglobinometer and NESTROFT (Naked eye single tube osmatic fragility test) as the primary screening test, followed by Complete Blood Counts (CBC) and HPLC test; for the screen positive cases. Serum Ferritin is done in required cases to confirm concomitant iron deficiency anemia in suspected thalassemia carriers. 37.3. The guiding elements of National Health Mission (NHM) Guidelines on Hemoglobinopathies are- Haemoglobinopathies are genetic disorders with an autosomal recessive inheritance implying that a) They are equally prevalent in males and females (b Have a `carrier and disease state
38 · 2. In nutshell- when diagnosis of Thalassemia major confirmed by appropriate clinical examination and laboratory tests as specified above and has progressive pallor with Hb persistently low ie <7gm% and have failure to thrive and require regular BT to maintain Hb above 10 shall be entry point for disability eligibility and with passage of time, as and when new complications develops disability shall be reassessed as mentioned above and higher score should be awarded_
39 · 2. Bleeding manifestations The characteristic phenotype in hemophilia is the bleeding tendency: Some patients may not bleed throughout life. Patients with mild hemophilia may not bleed excessively until they experience trauma O surgery: The severity of bleeding in hemophilia is generally correlated with the clotting factor level Most bleeding occurs internally into the joints O muscles Some bleeds can be life-threatening and require immediate treatment 39.3. Eligibility for certification a) History (including family history) especially males being affected and females are spared Review of previous medical records Physical examination Baseline coagulation profile (prothrombin time, partial thromboplastin time and thrombin time) Factor assay (if available) 39.4. Confirmation of diagnosis individual factor assay from recognized laboratory shall be made available (Appendix VII) 39.5. Disability grading shall be as follows:
0 · 01-0.05/U
10 · L 20%
40 · %-50%
40 · Multiple Disabilities 40.1. Definition: Multiple Disabilities means a combination of two 0r more disabilities mentioned below:- 1_ Blindness 2_ Low-vision 3 Leprosy cured persons 4_ Hearing impairment (deaf and hard of hearing) 5_ Locomotor disability 6_ Dwarfism 7. Intellectual disability 8 Mental illness 9 Autism spectrum disorder 10. Cerebral palsy 11. Muscular dystrophy 12_ Chronic neurological conditions 13_ Specific learning disabilities 14. Multiple sclerosis 15. Speech and language disability 16. Thalassemia 17. Haemophilia 18. Sickle cell disease 19. Acid Attack victims 20. Parkinson's disease
40 · 2. Guidelines for Assessment: 40.2.1. The guidelines used for every single disability shall be used for assessment of each disability of person having multiple disability in the first instance. 40.2.2. Subsequently, in order to arrive at the total percentage of multiple disabilities, the combining formula a + b(90 a), shall be used where 90 "a will be the higher score and '" will be the lower score. However, the maximum total percentage of multiple disabilities shall not exceed 100%_
30 · + 20090-302 90
40 · 2.3 For certifying more than two disabilities, each disability will be evaluated and the degree of disability will be calculated by the notified Specialists in the area. Based on the score received for each disability, they will be graded from the most severe to the least severe The formula:
4 · Rotation
5 · Abduction
6 · Adduction
1 · Flexion
3 · . Radial
4 · Ulnardeviatior
3 · Eating Indian Style 9% 4 Combing and Plaiting 9% 5. Putting on shirt/kurta 99
6 · Ablution glass of water 9%
7 · Drinking Glass of water 9%
8 · Buttoning 99 9 Tie Nara Dhoti 9%
2 · = Moderate: Lack of concern for self-care should be clearly established such as mild deterioration of physical health; obesity, tooth decay body odours. 3 = Severe: Decline in self-care should be marked in all areas Patient wearing torn clothes would only wash if made to and would only care if told. Evidence of serious hazards to physical health. (Malnutrition, infection, patient unacceptable in public) 4 = Profound: Total O near total lack of self-care (Example: risk to physical survival, needs feeding, washing; putting O clothes etc- constant supervision necessary) II: Inter Personal Activities Includes patient's response to questions, requests and demands of others, activities Or regulating emotions, activities of initiating, maintaining and terminating interactions and activities of engaging in physical intimacy. Guiding Questions What is her/his behaviour with others? b_ Is s/he polite? Does s/he respond to questions! d. Is s/he able to regulate verbal and physical aggression? e. Is s/he able to act independently in social interactions? f. How does s/he behave with strangers? g Is s/he able to maintain friendship? h Does sl/he show physical expression of affection and desire? Scoring 0= No Patient gets along reasonably well with people, personal relationships. No friction in inter-personal relationships.
1 · Questions Does slhe avoid talking to people? b_ When people come home what does s/he do? Does slhe ever visit others? d. Is s/he able to start, maintain and end conversation? Does s/he understand body language and emotions of others such as smiling, crying, screaming, etc- f. Does slhe indulge in reading and writing? g_ Do you encourage her/him to be more sociable? Scoring: 0 No disability: Patient mixes, talks and generally interacts with people as much as can be expected in herlhis socio-cultural context. No evidence of avoiding people. 1= Mild: Patient described as uncommunicative O solitary in social situations. Signs of social anxiety might be reported.
TE %o <o Udo-33004/99 — THE RIGHTS OF PERSONS WITH DISABILITIES ACT, 2016 — Roop's Law Assist Statutes